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Celebrating Progress in Prader-Willi Syndrome Research & Care

December 3, 2025 @ 6:00 pm - 8:00 pm

Rare Diseases NSW is proud to share this community event hosted by the Prader-Willi Foundation Australia. If you’re passionate about rare disease advocacy and care, this is a wonderful opportunity to connect and learn.

Join the Prader-Willi Foundation Australia for an evening of connection and insight as we celebrate progress in Prader-Willi syndrome (PWS) research and care.

This is your chance to come together with families, clinicians, and researchers who share the vision of a brighter future for those living with PWS.

Register now

Speakers:

  • Dr Ohn Nyunt and Charlotte Ireland-Larritt, the new PWS Nurse Coordinator at Sydney Children’s Hospital
  • Dr Tania Markovic – updates on clinical trials including Tirzepatide, Hero, and Acamprosate

Why attend:

  • Connect with the incredible PWS community – families, researchers, and clinicians
  • Celebrate the milestones achieved together
  • Discover what’s ahead for 2026 and beyond

 

Venue: Sydney (details to follow)

Details

Date:
December 3, 2025
Time:
6:00 pm - 8:00 pm
Event Category:
Event Tags:
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Website:
https://praderwilli.supporterhub.net.au/pages/rsvp-sydney

Organiser

Prader-Willi Research Foundation Australia
Email
admin@praderwilli.org.au
View Organiser Website