Clinical trials and advanced therapeutics offer hope for rare disease patients, but navigating access can be complex. Join this essential webinar to understand the pathway to cutting-edge treatments for your patients.
Learn practical strategies for:
Equip yourself with the knowledge to connect your patients with potentially life-changing therapeutic opportunities.
Dr Michelle Lorentzos is the Advanced Therapeutics Medical Lead at The Sydney Children’s Hospitals Network, leading the implementation and delivery of advanced therapeutic treatments and clinical trials for paediatric patients in New South Wales.
Michelle is a paediatric neurologist with a specific interest in gene replacement therapy and other innovative treatments. She is an investigator on several gene therapy clinical trials for conditions including Duchenne muscular dystrophy and Rett Syndrome and metabolic diseases.
Prior to undertaking her medical studies, Michelle obtained a Communications degree at The University of Technology, Sydney, and she has maintained a strong interest in the role of communication in health equity and outcomes.
The Rare Disease Project ECHO® Clinical Community of Learning Practice is a continuing professional development activity delivered via interactive webinars. The ‘hub-and-spoke’ outreach model connects health providers (‘spokes’) to a multidisciplinary team with expertise in rare disease (‘hub’).
The webinars start with a presentation on a specific topic from an expert. This is followed by reflective discussion, which all participants are encouraged to join.
Rare Disease Project ECHO® is an RACGP-approved CPD activity. However, the sessions are valuable for all health professionals.
Rare Disease Project ECHO® is organised by Rare Diseases NSW (UNSW Sydney; SCHN) and supported by Rare Voices Australia and the Rare Care Centre. It forms part of the RArEST Project, funded by the Australian Department of Health, Disability & Ageing.