Stay informed and connected
Explore upcoming events, monthly Community Updates, news articles and highlights from Rare Disease Day.
Stay connected with Rare Diseases NSW and the wider rare and undiagnosed disease community through events, news, research and resource updates, shared learning and annual Rare Disease Day activities.
Explore
Browse what is coming up, catch up on newsletters and news articles, or revisit the people, ideas and conversations shared through Rare Disease Day.
Find upcoming opportunities to learn and connect
Browse seminars, forums, webinars, conferences, workshops and community events relevant to rare and undiagnosed conditions.
Read Rare Diseases NSW monthly newsletters
Catch up on research, resources, events, community stories, advocacy and opportunities to participate.
Stories and updates from across our work
A new article library will share standalone news, project stories, research developments, community profiles, announcements and advocacy updates.
How You Can Shape the Future of Rare Disease
Revisit the 2025 Clinical Day and family-friendly Imagine More event, including presentations, community stories and photography by Positive Exposure founder Rick Guidotti.
Care. Connect. Cure.
Explore the ideas, people and priorities shared by 670 participants across two days at the UNSW Health Translation Hub and online.