Make a difference
Rare disease progress happens when lived experience, professional expertise, generosity and community come together.
There are many ways to contribute. You can help shape research, join a collaborative network, donate to our work, offer your skills or build a partnership with Rare Diseases NSW.
Choose your pathway
Whether you bring lived experience, clinical or research knowledge, professional skills, funding or organisational connections, your contribution can help improve rare disease care.
Help shape rare disease research from the beginning. Explore current projects and opportunities for people living with rare conditions, families and support people to contribute their lived expertise.
Join a connected network of healthcare professionals, researchers, patients, families, advocates and health-system leaders sharing knowledge, experience and good practice.
Your gift can help fund trusted information, care navigation, peer support, research, education, practical tools and the specialist workforce needed to improve rare disease care.
Offer your time or professional expertise in areas such as graphic design, communications, marketing, events, fundraising, government relations, advocacy, administration or another area.
Rare disease organisations, advocacy groups, health services, researchers and community partners can collaborate with us and join our growing network of Friends.