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  • Welcome
  • About Us
    • Our People
    • Community of Practice
  • Families
  • Health Professionals
    • Education & Training
    • RArEST Project
      • National Recommendations for Rare Disease Health Care
      • Rare Disease Project ECHO®
      • Taking Action Together Toolkit
  • Research Programs
    • Diagnosis4All
    • Rare Power – Get Involved in Rare Diseases NSW
  • Community
    • Our Friends
  • Events
    • Rare Disease Day 2026
      • Photos Day 1
      • Photos Day 2
  • News
  • Connect with Us

Tag: Ultra rare

Genetic Alliance Australia Forum: Stronger Together – Connection, Collaboration, Care

Event banner for the 36th Genetic Alliance Forum featuring intertwined DNA helixes and the theme “Stronger Together: Connection, Collaboration, Care.”

Genetic Alliance Australia invites you to their flagship community event — an evening to connect, reflect, and share the people, ideas, and progress shaping rare and genetic healthcare in Australia. The […]

Rare Diseases NSW acknowledges the Bidjigal people who are the traditional owners of the lands, seas and waters.
We pay our respects to Elders both past and present.

Copyright 2025 Rare Diseases NSW
An activity of the Randwick Health and Innovation Precinct