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  • Welcome
  • About Us
    • Our People
    • Community of Practice
  • Families
  • Health Professionals
    • Education & Training
    • RArEST Project
      • National Recommendations for Rare Disease Health Care
      • Rare Disease Project ECHO®
      • Taking Action Together Toolkit
  • Research Programs
    • Diagnosis4All
    • Rare Power – Get Involved in Rare Diseases NSW
  • Community
    • Our Friends
  • Events
    • Rare Disease Day 2026
      • Photos Day 1
      • Photos Day 2
  • News
  • Connect with Us

Tag: Integrated Care

Knowing When to Talk: Rethinking Palliative Care for Young People with Cancer

Illustrated banner for the Discipline of Paediatrics and Child Health Research Seminar Series, featuring children, healthcare professionals, medical research imagery and the UNSW Sydney logo.

Join the Discipline of Paediatrics & Child Health Research Seminar for an engaging presentation by Dr Madeleine Juhrmann, Postdoctoral Research Fellow within UNSW Medicine & Health and the Behavioural Sciences […]

Rare Diseases NSW acknowledges the Bidjigal people who are the traditional owners of the lands, seas and waters.
We pay our respects to Elders both past and present.

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An activity of the Randwick Health and Innovation Precinct