Medical trauma can profoundly impact rare disease families and their relationships with healthcare providers. Join this webinar to learn practical strategies for rebuilding trust and providing trauma-informed care.
Gain insights into:
- Understanding the impact of medical trauma on rare disease families
- Recognising signs of trauma in patients and caregivers
- Building therapeutic relationships after trust has been broken
- Creating safer, more supportive healthcare environments
- Practical communication strategies for trauma-informed practice
Learn directly from families’ lived experiences and enhance your ability to provide compassionate, effective care.
Register now
Speakers:
- Kelly Reid, Parent Education Program Lead, Belongside Families
Kelly brings a unique blend of teaching, counselling, and lived experience to her role at Belongside Families. Her professional journey began in music education before transitioning to primary classroom teaching. Following the birth of her third child, Lachie, Kelly experienced firsthand the challenges parents face when navigating disability services. Recognising the gaps in support systems, she pursued further studies in counselling and is currently completing a Master of Social Work. Her counselling work has focused on school wellbeing programs and supporting parents, adolescents, and children. In her current role, Kelly is committed to meeting families within the Belongside community, understanding their needs, and learning from their experiences. She is passionate about creating safe, knowledgeable, inclusive, and supportive spaces that will benefit families well into the future, ensuring parents feel less overwhelmed and more empowered on their journey.
- Pamela Rogers, Peer Facilitator, Belongside Families
Pamela brings both professional training in Early Childhood Education and profound lived experience as a parent to her role at Belongside Families. Raising and advocating for her son Christopher deepened her passion for supporting other families, particularly mothers navigating the disability journey. The unique insights gained through parenting Christopher have shaped her understanding of community and now guide her work at Belongside. As a storyteller, Pam honors her son by sharing her wisdom and experiences to offer validation and companionship to families on this path less travelled. She facilitates MyTime groups, Envisage workshops, and supports families with high medical needs. Pam also contributes to written resources, including co-developing ‘Finding Your Way’. Through her work, she provides a friendly ear and reassurance to parents, helping them feel connected, supported, and confident that their love for their child is always enough in creating safe, supportive spaces for families.
About Rare Disease Project ECHO®
The Rare Disease Project ECHO® Clinical Community of Learning Practice is a continuing professional development activity delivered via interactive webinars. The ‘hub-and-spoke’ outreach model connects health providers (‘spokes’) to a multidisciplinary team with expertise in rare disease (‘hub’).
The webinars start with a presentation on a specific topic from an expert. This is followed by reflective discussion, which all participants are encouraged to join.
Rare Disease Project ECHO® is an RACGP-approved CPD activity. However, the sessions are valuable for all health professionals.
Rare Disease Project ECHO® is organised by Rare Diseases NSW (UNSW Sydney; SCHN) and supported by Rare Voices Australia and the Rare Care Centre. It forms part of the RArEST Project, funded by the Australian Department of Health, Disability & Ageing.
