22q Family Conference

Rare Diseases NSW is proud to support the 2025 22q Family Conference hosted by 22q Foundation of Australia & New Zealand. While focused on 22q, the program covers broad topics relevant to families living with complex health conditions and the professionals who care for them.

Speakers & Topics:

• Dr Linda Campbell – Understanding receptive language issues in adults and children
• Jessica Thorley – Lived experience from a sibling’s perspective: growing up alongside a person with complex needs and becoming a carer
• Belongside Families – Everyday Advocacy in Schools
• Dr Emma Palmer (Sydney Children’s Hospital) – Rare Passport: pathways after a diagnosis
• Sydney Children’s Hospital Team – Siblings Project
• Dr Linda Campbell – Anger Management
• Family Networking Sessions

Who Should Attend?
Families, carers, clinicians, allied health professionals, and researchers interested in improving care for complex needs.