Recommended first
A Quick Reference Guide for patients and families
Use this guide for a quick introduction to the Rare Condition Passport and how it can support communication about important information, needs and preferences.
Start here
Get familiar with the Passport
The Quick Reference Guide provides an accessible introduction to the Rare Condition Passport and is a useful place to begin before completing your Passport.
Choose your resources
Download the Passport and supporting Instruction Manual
Choose the version that best suits you or the person you support. Each Passport is accompanied by an Instruction Manual to help you work through the resource.
Adult
For adults
Download the adult Rare Condition Passport together with its supporting Instruction Manual.
Passport
Adult Rare Condition Passport
The adult version of the Rare Condition Passport.
Supporting guide
Adult Instruction Manual
Guidance to help you work through and complete the adult Rare Condition Passport.
Child & young person
For children & young people
Download the child and young person Rare Condition Passport together with its supporting Instruction Manual.
Passport
Child & Young Person Rare Condition Passport
The Rare Condition Passport designed for children and young people.
Supporting guide
Child & Young Person Instruction Manual
Guidance to help children, young people, families and supporters work through the Passport.