Rare Diseases NSW’s unique research-enabled model of care and translational impact are made possible by the world-class expertise and collaborative approach of our clinicians and researchers. 

Rare Diseases NSW encompasses the wealth of rare disease expertise across the Randwick Health and Innovation Precinct (RHIP), which includes UNSW Sydney, Sydney Children’s Hospitals Network, and South Eastern Sydney Local Health District, together with 14 medical research institutes and centres.

Click below to see the list of healthcare professionals, researchers, families, and advocates  involved with the Rare Diseases NSW Community of Practice. 

Visit our Connect With Us page to join.