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Find Support
Health Professionals
- National Recommendations for Rare Disease Health Care
- Taking Action Together Toolkit
Research & Policy
Learn with Us
- Rare Disease Project ECHO®
Get Involved
- RarePower
- Community of Practice
News & Events
About Us
Support Us
Connect with Us

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Rare Diseases NSW

Care.
Connect.
Cure.

Working together to improve care, connection and outcomes for people living with rare and undiagnosed conditions.

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Email rarediseasesnsw@unsw.edu.au Visit us

UNSW Health Translation Hub
55 Botany Street
Randwick NSW 2031

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Acknowledgement of Country

Rare Diseases NSW acknowledges the Bidjigal people of the Eora Nation as the Traditional Custodians of the land on which we are based. We pay our respects to Elders past, present, and emerging, and recognise their enduring connection to Country.

As an organisation working with people across Australia, we also acknowledge and pay our respects to the Traditional Custodians of all Countries on which our patients, families, partners, and colleagues live and work.

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